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This Week

On Sunday, Joel had his triathlon with Oschner hospital of New Orleans and he had so much fun. That morning though, he gave us such a hard to time leaving the house. He would not get out of bed, so I had to forcefully dress him. Then he just would not come downstairs because he just had to finish is routine. (Dancing to YouTube videos and scrolling through Instagram.) We tried giving him his breakfast to eat in the car because we were running late and he refused; he sat down at the table to eat it… very slowly.

We get there at a good time despite Joel’ s efforts. The first course was swimming. Swimming is Joel’s favorite and he was so excited. He had the cutest smile the whole time. He started very quickly and was ahead but he lost his speed after the first lap. He was still very happy and enjoyed it.

The second was the bike course.  As many of you know, Joel has only recently learned to ride a bike. He had been pretty good on his own and only need help getting starting. So for the triathlon, Joel started really good and very quickly. His buddies weren’t ready and had to run after him. But for some reason Joel lost his balance and crashed into the gate. After that his buddies wouldn’t let go of the bike, which slowed him down a lot. I know they were trying to keep him safe  and they don’t know how Joel usually does. But that course took FOREVER! He still had lots of fun and we were later told that the whole time he was burping and poking his buddies and laughing the whole time.

The final course was the running part. I know Joel does not like to run for long periods of time. So, just like everything else, Joel started fast and eventually ending up walking a lot of the course. Once he saw the finish line, he quickly picked speed and threw his hands in the air. Close to the finish line UNO’s basketball team ( I loved how much they hyped up the kids) joined him yelling and cheering and they all ran into the finish line together. As soon as he crossed the finish line, Joel was met with prizes and a medal.

The whole thing was a lot of fun and Joel had a great experience. I think his favorite part was all the free food, snowballs, and dancing afterwards. Thanks Oschner!

We also started selling handmade soaps to raise funds for Joel’s vocational program for when he finishes high school.  All week Joel has been helping my sister and I make home made soaps, candles, and greeting cards. Unfortunately, we live in a state with a never ending waiting list for waivers and because of my family’s language barrier, Joel got on the list pretty late. Making soap has become a way for us to teach Joel some new skills and to start building is funds. Check out our shop under the about tab in the home page.

Joel and I had our first interview and it is published here: Project Open Doors This is an organization that “provides dedicated media coverage and support to the disability sector and change the way the disability community is reported in the media, and perceived by the community at large.”

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