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LIGHT

I think all of us in Down Syndrome community know about the whole end of Down syndrome through abortion in Iceland and in other countries. The rate of abortion for babies diagnosed with down syndrome is so high in the U.S as well. In Ohio they may pass a bill making it illegal for mothers to have  abortion for babies diagnosed Down syndrome. Here is a quote I found on a mother’s thoughts on it:

“”This bill sends a very clear message, that some disabilities are more worthy of life than others and that one disability — Down syndrome — is the most worthy,” Jane Gerhardt, a woman whose daughter suffers from Down syndrome, testified Tuesday, according to local reports.”   Ban on DS Abortions

I am not sure how feel about it but I do agree with this mother. But my big issue with this excerpt is that the journalist says that this woman’s daughter “suffers” from Down syndrome. Suffers? Really? I am so tired of people saying things like that. Here’s another article I found when doing some research on Down syndrome:

“Down’s syndrome, also known as trisomy 21, is one of the most common genetic diseases” A “Scientific” Research Site

Down syndrome is not a disease. Down syndrome is not a disease. Down syndrome is not a disease. Down syndrome is not a disease. Down syndrome is not a disease. 

It’s not contagious, people do not suffer from it, it’s not an illness. Although some people with Down syndrome do have other health complications, Down syndrome alone is not a disease. Okay?

During my little research, I found a blog post from one of my favorite people, the Gungors. They have a daughter with Down syndrome and their diagnosis is story  is one that I feel is so important for families to read. I know I am not a parent but many times I feel like Joel’s mama and I get so drawn to these kind of stories. You can read their story here: lucette The bible verses they used for comfort is one that I have read a million times but I never read it the way I did in their blog.  Psalm 139

Here’s our version of these bible verses for my boy Joel:

For you created his inmost being;
    you knit him together in our mother’s womb.
14 I praise you because he is fearfully and wonderfully made;
    your works are wonderful,
    I know that full well.
15  His frame was not hidden from you
    when he was made in the secret place,
    when he was woven together in the depths of the earth.
16 Your eyes saw his unformed body;
    all the days ordained for him were written in your book
    before one of them came to be.

This I will keep in mind for all the harsh words I hear or read about Down syndrome. When Someone says something ignorant, even when Joel makes mistakes or can’t do certain things, I will remember this Psalm. Joel is perfect, God made no mistake.

In case you don’t know who the Gungors are, they are musicians and here is their song for their daughter Lucette.

“Light”

“Your eyes, they opened And love was spoken The tears came tumbling down Your heart was broken The words were spoken The tears came tumbling down And the blind gained sight As we met our light Oh the joy and fight The gift of life Your hands, the creases Your feet, your breathing You’re mine, you’re perfect light And the blind gained sight As we met our light Oh the joy and fight The gift of life I can’t take my eyes off of you oh my Light I can’t take my eyes off of you”

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