This is a blog about my experiences as a sibling to the best little brother who happens to have down syndrome. My posts will not be a sugarcoated or misleading, I will try my best to show the reality of my life with Joel. If my goal is to spread awareness and share my experiences with down syndrome, I cannot hide the parts that aren’t so great. With that being said, I do not doubt that most of my blogs will be positive. I want to reveal the truth and the truth is mostly great. I love my brother and how he affects (effects?) my life. He has literally shaped me and has taken control of my life and I want to share it with you!
My posts will not be in any particular order, but I hope you enjoy.
Joel is currently a senior in high school but he can stay until he ages out. The problem with him staying is that he’s not really progressing. It’s been the same thing over and over again. (Although I must admit this year he lucked out and has an amazing teacher that may sway my opinion.) Eventually we want to move him to another school/vocational program that will cost a lot of money. This may not be until he ages out though.
Louisiana does have a waiver that funds these kind of programs for individuals with disabilities, but they say it’s about a 10 year waiting list that continues to grow. My family did not know about it until 2014…. Now, because I work in the field that I do, I know that the waiting list is longer than that. They are currently serving people from 2004. You can do the math. The only way the list will get shorter is if people withdraw or die… (Sounds so dark) They are saying they will try to work out a new way to make the list go by faster. We’ll see. To try and fund Joel’s vocation program, we started making soaps, candles, greeting cards, and more at local craft fairs and flea markets. You can check out some our stuff at our shop or you help us out by donating below.
Donation for Joel’s Vocational Program
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