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Category: Uncategorized

Siblings

What’s it like being Joel’s sister? Being Joel’s sister is the greatest and most important role in my life. I know I talk about it all the time but how can I not? Joel is what keeps me busy and keeps me here. I would do…

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Shouting Joel’s Worth

We’re FAMOUS! Just kidding! But we did make our local Telemundo news station… at 10pm… when no one’s watching… I was called by one of the reporters who also works as a PCA for one of our friends who also has down syndrome. She…

Progress

Today the average lifespan of a person with Down syndrome is approximately 60 years. In the ’80s, the average lifespan of a person with Down syndrome was only 25 years. This increase to 60 years is largely believed due to the end of the institutionalizing people with…

Communication

Have you ever you lost your voice and tried to tell someone something but no one could guess what you were saying? That’s sort of Joel every day. It really is such a horrible feeling when Joel is trying so hard to tell me…

Family Support

A supportive family makes all the difference, along with early intervention. I want to share something that may be offensive and it’s not my intention to do so but I think it’s important. There’s someone I’ve worked with who we’ll call Minnie. Minnie has…

He’s a Wonder

He’s a wonder. ❤️ If you don’t know him personally, let me give you some insight. Joel is considered non-verbal. This causes a lot of frustration with him. There have been times that he’s gotten violent. Not all days are good days. He is the…

Language

The way we speak says a lot, whether we realize it or not. Especially when we speak to individuals with disabilities. It is important that we are aware of our terminology and manner of speaking. There is power in our language and in what…

Regression?

I wanna say Joel was 10 years old in the picture. So about 8 years ago. So little. So precious. So long ago. I miss this little booger. So Joel seems to be reverting back to some problem behaviors and also picking some up….

Joel and Jesus

This will obviously be a more religious post. and For reference when you are reading we are nondenominational Christians who lean more on the on the Pentecostal side sort of. Does Joel know who Jesus is? This question always gets me thinking. I honestly…

Sometimes, It Gets Crappy

See that beautiful face in the picture? See how adorable he is? Keep that in mind when reading this post! Living and caring for Joel means that sometimes, you will have to put up with his crap. I mean literally. Literal crap… poo-poo. He…