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Category: Uncategorized

Wisdom Tooth

Joel had a wisdom tooth removed today and he was a mess all morning. He is usually so well behaved and cooperative with doctors. He actually loves going to the doctor, when he gets a minor cut or the slightest ache of any kind…

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In Case You Need Some Encouragement

Raising a child with special needs is hard work. I know I’m not a momma I do get tired, worn out, and worry about his future. Those late nights where Joel cries because he had a nightmare or isn’t feeling well. (our rooms are…

Guardianship and Supported Decision Making

I’ve seen a lot of online discussion promoting complete independence for people with disabilities. And I do promote independence, but not everyone with a disability will be able to achieve complete independence. A lot of times these posts also shame families that choose some…

LIGHT

I think all of us in Down Syndrome community know about the whole end of Down syndrome through abortion in Iceland and in other countries. The rate of abortion for babies diagnosed with down syndrome is so high in the U.S as well. In…

Accessibility and Inclusion

Yesterday we went to a playground dedication for New Orleans’ first inclusive and accessible playground! How exciting!  So Drew Brees teamed up with Audubon Nature Institute to open up a new inclusive playground. It was funded and planned out by The Brees Family and The Brees…

Joel’s Health

Our boy has struggled with hyperthyroidism and pre-diabetes. This means that he really needs to watch what he eats. But he doesn’t understand that. This has led to many fights with him (sometimes he gets physical) because in his eyes, us denying him food…

Upside Downs

Don’t let Joel’s grumpy face fool you, he was just confused and sleepy from his car nap. (It was an hour long drive) A couple of weeks ago we went to the Magical Dance Party hosted by Upside Downs.  It was a great time…

Religion in my Family and Disability

My family had a recent disturbing incident. At this point I don’t care if I offend anyone but I still won’t use real names. I have a family member with autism, we’ll call her Sophia the First. If you don’t know my family, most…

Heroes

For today’s post, I decided to share a story of two of the most incredible people I know., Matthew and Joseph! This picture was taken over the summer when they presented a training on self-advocacy with me. Here’s the video if you’re curious: Guichard Twins…

Police Brutality and Down Syndrome

I wrote this post last year on Facebook because it was heavy on my heart. I started it off like this, “In honor of Down Syndrome Awareness Month I am making this post because I love someone with Down syndrome and I feel the…

Family

Family is supposed to be your biggest support system, but I have found that this is only somewhat true. Family is weird at times. Ya know, families fight and stuff but they also love each other. It is very much love/hate I think. My…

Dear Joel

Dear Joel, I love you so much. You came into my life when I was five years old. I remember being so excited that you were born and I would tell everyone that my mom just had a baby.  I didn’t find out that…