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Category: Uncategorized

IEP Guide

If you’re here chances are you know what an IEP is. Individualized Education Program. In case you don’t know, I work at my state’s Parent Information and Training Center. Find yours here. I work with families daily on IEPs, special education, and all disability…

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Joel’s Birthday Revelations

Joel’s 18th birthday was this weekend, he’s officially an adult!  Our boy is so grown and he never ceases to amaze me and make my heart melt. This was very big birthday for us. We celebrated his golden birthday on Sunday, 18 on the…

Ableism Kills

In case you don’t know what ableism is, it’s discrimination against people with disabilities. Whether it is intentional or not. It can look like typical discrimination expression  like hate for people with disabilities and rejection of disabled applicants for housing and jobs. Or it…

I’m Sorry

This picture was taken in Leakey, Texas this past Thanksgiving. Joel struggled so hard to get up there and I think I’ve mentioned this before but he really has some balance issues. We all had to push him up because he was determined to…

Wisdom Tooth

Joel had a wisdom tooth removed today and he was a mess all morning. He is usually so well behaved and cooperative with doctors. He actually loves going to the doctor, when he gets a minor cut or the slightest ache of any kind…

In Case You Need Some Encouragement

Raising a child with special needs is hard work. I know I’m not a momma I do get tired, worn out, and worry about his future. Those late nights where Joel cries because he had a nightmare or isn’t feeling well. (our rooms are…

Guardianship and Supported Decision Making

I’ve seen a lot of online discussion promoting complete independence for people with disabilities. And I do promote independence, but not everyone with a disability will be able to achieve complete independence. A lot of times these posts also shame families that choose some…

LIGHT

I think all of us in Down Syndrome community know about the whole end of Down syndrome through abortion in Iceland and in other countries. The rate of abortion for babies diagnosed with down syndrome is so high in the U.S as well. In…

Accessibility and Inclusion

Yesterday we went to a playground dedication for New Orleans’ first inclusive and accessible playground! How exciting!  So Drew Brees teamed up with Audubon Nature Institute to open up a new inclusive playground. It was funded and planned out by The Brees Family and The Brees…

Joel’s Health

Our boy has struggled with hyperthyroidism and pre-diabetes. This means that he really needs to watch what he eats. But he doesn’t understand that. This has led to many fights with him (sometimes he gets physical) because in his eyes, us denying him food…