Below is a list of resources I use personally and professionally. Most are useful for all disabilities. Hope you find this helpful.
Louisiana Down Syndrome Organizations:
National Down Syndrome Groups:
Need help explaining Down Syndrome:
To find a Down Syndrome Support Group in your state or Country use this link:
List OCDD in all states:
Find the Parent Center(s) for your state here:
To make your child’s wish come true fill out an application here:
Summer Camps: I tried to add the ones that have locations in more than one state. I know there should be multiple in each state and if you want more information for your state specifically, I can help you look or you can contact your state’s parent center which is linked above.
Apply for or get more information on SSI for your child here:
Safety with Emergency Responders:
Able Accounts: Find Specific information for your state here:
For more specific information in your state on guardianship, I think it’ll be best for you to contact your state’s Parent Center which is linked above. Here’s our story on guardianship : Continued Tutorship
Websites I always use:
Eventually I’ll dedicate whole posts on specific topics listed here. I literally use this information/resources/links all the time for my job and they are super useful. Feel free to ask any questions.