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Tag: down syndrome

Shouting Joel’s Worth

We’re FAMOUS! Just kidding! But we did make our local Telemundo news station… at 10pm… when no one’s watching… I was called by one of the reporters who also works as a PCA for one of our friends who also has down syndrome. She…

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Family Support

A supportive family makes all the difference, along with early intervention. I want to share something that may be offensive and it’s not my intention to do so but I think it’s important. There’s someone I’ve worked with who we’ll call Minnie. Minnie has…

Sometimes, It Gets Crappy

See that beautiful face in the picture? See how adorable he is? Keep that in mind when reading this post! Living and caring for Joel means that sometimes, you will have to put up with his crap. I mean literally. Literal crap… poo-poo. He…

Summer Adventures

First off… HAPPY 4th of JULY!! Joel has had quite a busy summer. Starting with his graduation, prom, parties… Joel has been having a great time. Earlier last month he went on his annual trip to Lion’s Camp! Sadly I do not have pictures…

Graduation?

If you follow us on social media, then you probably know Joel attended his first regular high school prom and he attended his graduation! Woo-hoo! Prom: Joel is an amazing dancer and loves going to shindings, but we have never let him venture out…

Morgan’s Wonderland

We visited Morgan’s Wonderland two weekends ago. In case you don’t, Morgan’s Wonderland is the only fully inclusive theme park in the world. Sadly, their water park was closed still… huge bummer. I was very impressed with all of the wheelchair accessible swings and…

Death by Cop

Ethan Saylor. He was a 26 year-old who had down syndrome. He died five years ago while in police custody. I know I’ve written about it before but I wanted to revisit Ethan’s case. Ethan loved the movie Zero Dark Thirty. He loved it…

Like They Know What Love Is

I recently had an encounter with Joel’s principal that left me a little shocked. My mom and I were waiting in the office for Joel’s IEP and the principal saw us and started a conversation. She recognized us and started talking to us about…

Happy World Down Syndrome Day

It’s World Down Syndrome DAY!! I hope everyone is celebrating in some way today. I love seeing the pictures of the crazy socks and heartfelt stories. I am so blessed to be part of the down syndrome community. I know I’ve mentioned a million…

I’m Sorry

This picture was taken in Leakey, Texas this past Thanksgiving. Joel struggled so hard to get up there and I think I’ve mentioned this before but he really has some balance issues. We all had to push him up because he was determined to…