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Tag: family

Shouting Joel’s Worth

We’re FAMOUS! Just kidding! But we did make our local Telemundo news station… at 10pm… when no one’s watching… I was called by one of the reporters who also works as a PCA for one of our friends who also has down syndrome. She…

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Family Support

A supportive family makes all the difference, along with early intervention. I want to share something that may be offensive and it’s not my intention to do so but I think it’s important. There’s someone I’ve worked with who we’ll call Minnie. Minnie has…

Summer Adventures

First off… HAPPY 4th of JULY!! Joel has had quite a busy summer. Starting with his graduation, prom, parties… Joel has been having a great time. Earlier last month he went on his annual trip to Lion’s Camp! Sadly I do not have pictures…

Graduation?

If you follow us on social media, then you probably know Joel attended his first regular high school prom and he attended his graduation! Woo-hoo! Prom: Joel is an amazing dancer and loves going to shindings, but we have never let him venture out…

Sexual Assault and other Crimes against People with Disabilities

Crime and discrimination against people with disabilities is a growing problem. What makes it worse is that many incidents do go unreported. Some people refer to this as the silent epidemic because of the inability of most victims to verbalize, to know what is…

Joel’s Birthday Revelations

Joel’s 18th birthday was this weekend, he’s officially an adult!  Our boy is so grown and he never ceases to amaze me and make my heart melt. This was very big birthday for us. We celebrated his golden birthday on Sunday, 18 on the…

In Case You Need Some Encouragement

Raising a child with special needs is hard work. I know I’m not a momma I do get tired, worn out, and worry about his future. Those late nights where Joel cries because he had a nightmare or isn’t feeling well. (our rooms are…

Guardianship and Supported Decision Making

I’ve seen a lot of online discussion promoting complete independence for people with disabilities. And I do promote independence, but not everyone with a disability will be able to achieve complete independence. A lot of times these posts also shame families that choose some…

Upside Downs

Don’t let Joel’s grumpy face fool you, he was just confused and sleepy from his car nap. (It was an hour long drive) A couple of weeks ago we went to the Magical Dance Party hosted by Upside Downs.  It was a great time…

Religion in my Family and Disability

My family had a recent disturbing incident. At this point I don’t care if I offend anyone but I still won’t use real names. I have a family member with autism, we’ll call her Sophia the First. If you don’t know my family, most…

Family

Family is supposed to be your biggest support system, but I have found that this is only somewhat true. Family is weird at times. Ya know, families fight and stuff but they also love each other. It is very much love/hate I think. My…

Dear Joel

Dear Joel, I love you so much. You came into my life when I was five years old. I remember being so excited that you were born and I would tell everyone that my mom just had a baby.  I didn’t find out that…